ACC (Agenesis of the Corpus Callosum)
Network
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The ACC Network has suspended operations
as of April 15, 2009. For resources pertaining to agenesis and other
disorders of the corpus callosum, please contact the National Organization
for Disorders of the Corpus Callosum www.nodcc.org or
email them at info@nodcc.org.
Thank you.
Mission: The ACC Network is an international
network dedicated to providing information and a communication link
for individuals with brain anomalies involving the corpus callosum,
their families, and the professionals who work with them.
The ACC Network was founded in 1989 by Gary
and Kathy Schilmoeller in response to the lack of information available
about agenesis of the corpus callosum and the desire to help interested
families network to share information and support.
The ACC Network is located at the University
of Maine in Orono, Maine. The network mails information packets on
request, maintains a networking directory, publishes a newsletter,
and sponsors an online discussion group (ACC-Listserv) to foster
communication among network participants.
University
faculty and staff associated with the ACC Network conduct research
to develop a behavioral phenotypes of individuals with ACC and other
callosal disorders, including issues related to social, physical,
communication, developmental, health-related and other characteristics.
In addition, network staff assists outside researchers in their
recruitment of participants for ACC-related research projects, including
neuropsychology, genetics, speech/language pathology, and other related
fields.