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The following list is presented as a service to families and others interested in callosal conditions and other issues related to disability. Content reflects the varied views, broad experiences, and specific work of individual Web site hosts, not necessarily those of the ACC Network or the University of Maine.

Organizations Dedicated to ACC and other Callosal Conditions

• Corpal - www.corpal.org.uk

• NODCC (National Organization for Disorders of the Corpus Callosum) -  www.nodcc.org

University-affiliated

• Shufflebrain: Agenesis of the corpus callosum -  www.indiana.edu/~pietcsh/agenesis00.htm

• Brain Development Research Program, University of California, San Francisco - www/ucsf.edu/brain/callosum/callosum.htm

Related Conditions

• Aicardi Syndrome Foundation - www.aicardisyndrome.org

• The Hydrocephalus Association - www.hydroassoc.org

Disability-related Organizations

• The Arc - www.thearc.org

• Beach Center on Disability - www.beachcenter.org

• MUMS (National Parent to Parent Network) - www.netnet.net/mums/

• NICHCY (National Information Center for Children and Youth with Disabilities) - www.nichcy.org

• NINDS (National Institute of Neurological Disorders and Stroke) -  www.ninds.nih.gov/disorders/agenesis/agenesis.htm

• NORD (National Organization for Rare Disorders, Inc.) -  www.rarediseases.org/search.rdblist.html

• PACER Center - www.pacer.org

• Parent to Parent USA - www.p2pusa.org/

• SNAP (Special Needs Advocate for Parents) - www.snapinfo.org

Contact:
ACC Network
5749 Merrill Hall Room 118
University of Maine
Orono, ME 04469-5749
(207) 581-3119
um-acc@maine.edu 
 

Last revised on: 05/04/2006