Education & Human Development

Networking Opportunities

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The ACC Network provides opportunities for individuals with callosal conditions, their families, researchers and other professionals to network with one another. Our goals are to promote family support through the sharing of knowledge and experiences, as well as to stimulate further research on callosal conditions. Currently, the ACC Network community includes more than 3,100 families and 1,850 professionals in 60 countries around the world.

Index: | For Families | For Professionals |

Networking for Families
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The ACC Network assists individuals and families to connect with one another in several ways. The ACC-L listserv and the ACC Network Directory allow families to share their experiences, support, and practical information directly with one another. When families have more specific interests, we utilize the ACC Network database to assist participants to connect with others of similar circumstances.

Welcome letter

Independent Networking Opportunities

ACC-listserv

The ACC-L Listserv is an electronic discussion group focused on disorders of the corpus callosum and related issues. Currently, more than 500 people (adults with ACC, parents and other family members, and professionals) participate in the listserv. If you would like to subscribe to the ACC-L listserv, please follow these steps:

1. Address an e-mail message to listserv@lists.maine.edu
2. Leave the subject line blank.
3. Create this message:

Subscribe ACC-L (list your first name and last name)

4. Send the message. You will receive an e-mail response with further instructions about how the listserv operates.

If you have trouble getting on the Listserv, please e-mail Gary Schilmoeller, listserv moderator, at RHD351@maine.edu.

ACC Network Directory

The ACC Network maintains a directory of family contact information (phone number, mailing address, e-mail address) of those families who have provided signed permission to be included in the directory. The information packet sent to new families contacting us includes the directory listings for their specific geographic regions by state (within the United States), province (within Canada), or by country (outside the United States and Canada). Upon request, we will send additional and updated listings. The directory has been used by families in the network to initiate contact with other individuals and to facilitate local family gatherings.

ACC Network-assisted Networking

Networking by additional conditions or specific issues of concern

Families sometimes find it helpful to connect with others who are dealing with similar conditions (e.g., ACC and septo-optic dysplasia, ACC and hydrocephaly) or specific issues of concern (e.g., a need for behavioral intervention). We also receive requests from families seeking others who speak languages other than English and wish to network in another language. We make our best attempt to assist families when there is a specific request. Please contact us if you are interested in this type of networking.

Local gatherings

The ACC Network aids families who wish to organize local gatherings of network families. Upon request, we will forward your letters of introduction or invitation by e-mail or surface mail to families in your local area, including those not listed in the ACC Network Directory. Please contact us if you are interested in a local gathering for additional details about this process.

Networking for Professionals
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Upon request, we assist professionals interested in issues related to callosal conditions to connect with one another through the use of our database. For example, speech-language pathologists or developmental therapists may find it helpful to communicate with others in their fields regarding issues specific to serving children or adults with callosal conditions. If you are a professional interested in this type of networking, please contact us.

Professionals are also welcome to participate in the ACC-L listserv. See the instructions for joining the ACC-L listserv below.

ACC-listserv

The ACC-L Listserv is an electronic discussion group focused on disorders of the corpus callosum and related issues. Currently, about 500 people (adults with ACC, parents and other family members, and professionals) participate in the listserv. If you would like to subscribe to the ACC-L listserv, please follow these steps:

1. Address an e-mail message to listserv@lists.maine.edu
2. Leave the subject line blank.
3. Create this message:

Subscribe ACC-L (list your first name and last name)

4. Send the message. You will receive an e-mail response with further instructions about how the listserv operates.

If you have trouble getting on the Listserv, please e-mail Gary Schilmoeller, the listserv moderator, at RHD351@maine.edu.